Dercum's Disease presents a wide array of symptoms, which may seem - when seen individually - somewhat innocuous or common. You gain weight disproportionately, but you can't explain why. You feel tired, you ache constantly, yet nothing seems to relieve your pain and exhaustion. You seem susceptible to infection, you bruise easily. And yet despite all of this, after a wide array of tests, your doctors can't seem to explain why you have this strange myriad of symptoms. You're told to exercise, but nothing helps. Your diet doesn't seem to affect your size. And that pain, it just won't go away.
This unique combination of symptoms when put together, paint a seemingly hopeless and inexplicable picture of chronic pain and uncontrollable weight gain. Needless to say, this can be incredibly frustrating and depressing for the unknown number of women and men who are suffering from this seemingly rare and unfamiliar disease. Although this disease affects both genders, it is twenty times more prevalent among women. This is a disease that was first discovered by Francis Dercum in 1888, and yet so many women are suffering without treatment due to simple and straightforward lack of information. We can change this.
At this time, it is impossible to know how many individuals suffer from Dercum's Disease in the United States and around the world. Despite having been discovered well over one hundred years ago, it is still widely unknown to the medical community and has yet to be seriously and comprehensively studied. It is being actively pursued by a few doctors and medical institutions in Europe, primarily in Sweden, where it is estimated that 10,000 women are afflicted with Dercum's. In a country with a population of just over 9 million people, imagine multiplying and extrapolating those 10,000 sufferers out to the 60 million people of the United Kingdom, the 82 million of Germany, or the nearly 296 million citizens of the United States. This is a disease that could result, at best, in a lifetime of chronic pain, or at worst in premature pulmonary failure. If the results of the studies in Sweden are any indication, this disease may not be as rare as was once believed. It is rapidly claiming the livelihoods of countless women in the United States alone.
Despite the early discovery of this disease, women have been suffering in ignorance of the cause of their pain for well over a century. Many have died after lifetimes of criticism for their obesity, in spite of their best efforts to moderate their diets and exercise regularly. They have been denied a healthy normal life because of the constant pain brought on by this disease and have suffered the frustrations of the futility of their efforts to become well and whole. Countless numbers have suffered through all of this, without ever knowing why.
This is truly senseless and must be changed. Treatment is possible and, through education and research, hope can be delivered to those who need it so desperately.
We encourage everyone - from the average person to all medical professionals - to browse through this website and educate themselves about this disease. Even if you are not diagnosed with Dercum's or have not suffered from any of its symptoms, your knowledge will help spread awareness of this condition and encourage others to be evaluated. If you are a medical professional, a basic understanding of this disease will help your patients who are searching for help and relief from chronic pain. Increased public awareness will help to save the lives of women everywhere who are suffering in silence.
Please, read and discuss what you find here; it will help save a life or two, or perhaps a few million.
Next - Symptoms at a Glance
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